RO_IX 2006_123

Grant NumberRO_IX 2006_123
TypeIn-Country Grant
CountryRomania
OrganizationRomanian Prader Willi Association - APWR
Project NameRomanian National Alliance for Rare Diseases - RONARD
Amount AwardedUSD 60,000.00
Grant PeriodMarch 01, 2007 - September 01, 2008
Project Description

The project aims to:
- develop a national network of key representatives from patient organizations, communities, and public institutions - the Romanian National Alliance for Rare Diseases;
- establish a common strategy for tackling the issues related  to rare diseases;  
- organize an Information Campaign on rare diseases, as part of the National Conference for Rare Diseases;
- create a national training program targeting all stakeholders involved in rare diseases.

Websitehttp://www.apwromania.ro/
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